Family support and caregiver support networks are a must for those battling pediatric cancer. Here are some that will help tell your story and keep you connected to your loved ones.
Cancer affects the whole family.
Often, cancer treatments for children are deemed “experimental” and are not covered by insurance. This, coupled with already burdensome medical bills, leads to an enormous amount of financial stress for all members of the family.
Children whose parents and siblings have sacrificed so much to fight cancer often experience guilt for playing on a soccer league or sticking with dance lessons or needing a new pair of shoes. Your monetary support allows them to worry less and enjoy more because now Mom and Dad can do the same.
This private Facebook group is only for cancer parents to be members of. It’s a place to share your story, ask for opinions and suggestions, connect with families who are going through similar things, and a place to go for support. You must request to be a member and we will approve.
Bags of Fun is an organization based out of Denver, Colorado that provides back packs full of educational and rehabilitative toys, a tablet, and many fun things to help bring a smile, some fun, and a distraction to sick children. In September of 2019, Angels Among Us became the official partner to ensure that any newly diagnosed child receives a bag .
The Carolyn Scott Rainbow House in Omaha is a 56-room guest house for out-of-town families who are coming to Children’s Hospital & Medical Center from more than 60 miles outside of Omaha.
This coalition of Nebraska organizations is working to provide support, advocate, and ultimately end childhood cancer. Members of this organization provide resources for your family, give you ways to advocate, and even learn more about support research projects. Need a place to stay? Bills paid? Or want to connect with an organization that’s advocating for change? This is the best place to go!
The Ronald McDonald House in Omaha provides housing, meals and support services to families who are away from home due to medical treatment of a child regardless of their ability to pay.
Special Spaces focuses on providing dream bedroom makeovers for children with cancer. They transform their bedroom into a place that only the child can dream or imagine, heal, recover, and most importantly find peace from everything else going on in their world. The organization was founded nationally in 2004 in Tennessee and now has 20+ chapters across 15 states with over 1,000 room transformations under their belt. In 2018, Ronnie and Amy Thomas opened the Omaha/Lincoln Metro Area chapter. Since opening, they have had the privilege to gift six bedroom makeovers to deserving families thanks to numerous volunteers and sponsors– all of which have been Angels Among Us pediatric cancer families.
Wear Yellow Nebraska is an organization whose focus is to provide service, support, and community for Nebraska’s cancer survivors. If a family needs transportation help to/from treatment, this is a great resource.